Rosa Monique has been diagnosed with autoimmune condition Scleroderma/Systemic Sclerosis. Scleroderma is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. One of the visible manifestations of the disease is the hardening of the skin.
Rosa needs an amount of £15,000 (GH¢107,035) for treatment in the UK and money to cover the cost of travel, the cost of staying in the hospital and also the cost of the tests.
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Here’s the story of Rosa Monique:
My story goes way back to 2012 when it all started with what appeared to be a chronic cough. I was diagnosed with pneumonia after a couple of tests and subsequently underwent extensive treatment for the infection. Curiously, the cough intensified after treatment, so for one who should have been healed or at least on the mend, I was feeling a lot worse than I had when it all started.
My skin started thickening in certain areas and I got lighter patches on my skin. Everything was strange as I was receiving no diagnosis from doctors yet I was given all these trial drugs to see if something will work.
My body kept changing! I shrank in size! My face changed! My lips thinned out and I suddenly had an overbite for which I had to get braces to correct. The physical pain wasn’t half as excruciating as the emotional pain I had to endure. For each cough in public, I had people either reprimand me with disdainful looks or move as far away from me as possible, lest the caught any sickness from me.
Fast forward to 2019, 7 years of coughing without any known cause. I got the opportunity to see one of only two rheumatologists practising in Ghana. After a series of tests, I finally received a diagnosis. While I had for these seven (7) years been eager to know what was wrong with me so I could have it treated right away, I wasn’t even remotely prepared for the news I was about to receive.
I was diagnosed with an autoimmune condition Systemic Sclerosis/Scleroderma.
The disease has attacked my lungs and has rendered me incapable of doing a lot of activities. I get extremely painful digital ulcers on my toes and fingers that can be very limiting.
So as it stands now I have the opportunity to receive treatment from a team of World Class Scleroderma doctors in the UK and it doesn’t come cheap at all. I need to raise this amount of money to cover the cost of travel, the cost of staying in the hospital for some days and also the cost of the tests.
I will be very blessed to receive any support I can get in my bid to access good health care to save my life.
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